National Patient Registry Created

I was delighted to see in the Pulmonary Fibrosis Foundation's March e-newsletter that a national patient registry and database has been created. It is called the PFF Patient Registry. The registry will allow tracking of those being treated for the disease, what treatments they are receiving, and other vital information. The Registry information will be de-identified (no unique patient identifiers), and will prove useful to researchers developing treatment, as well as physicians determining courses of care.